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We are proud to support research labs globally to increase recruitment for FASD- and IDD-related research projects. If you have an IRB-approved project you would like to advertise on our website, please reach out to info@fasdcollaborative.com.

Mandated Reporting Laws, Prenatal Alcohol Use, and Fetal Alcohol Spectrum Disorders: A Policy Analysis Study

Target group: Any member of FASD community, healthcare or child welfare professionals, government body officials in the US

  • Primary goal is to evaluate US federal and state mandated reporting laws that require FASD and prenatal alcohol exposure to be reported to Child Protective Services (CPS)

  • Project intends to provide a final policy recommendation for mandated reporting laws related to prenatal alcohol exposure and FASD

  • Data collected through survey responses and stakeholder interviews

  • Access the survey here

Doctor with Infant
Job Interview

Community Engagement in FASD Research Study

Target group: Researchers in FASD globally

  • Researchers from any country globally who study FASD, including principal investigators (PIs), research staff, graduate students, etc.)

  • Requires reading and writing in English

  • Focused on understanding barriers and facilitators to community-engaged research practices in the FASD field (both clinical and preclinical work)

  • View the digital flyer here

  • Access the survey here

Spatial Development Study

Target group: Children to young adults (ages 12-25) with an intellectual disability (ID) and their parents/caregivers

  • For participants in the United States and Canada

  • Focused on understanding the how spatial abilities develop in typically developing children and people with intellectual disabilities.

  • Participants complete several tasks of learning that are age-appropriate and administered individually.

  • Requires parents to complete several questionnaires about daily behaviors of their children

  • Study sessions conducted via Zoom (2-3 hours, over 2 to 4 sessions).

  • Sessions are recorded and used only for experimental purposes

  • Participants receive a $50 gift card for their time and effort

  • View the digital flyer here

     

Happy Tourist
Child with a Windsurf Rig

Strengths-Based Identification Tool Study

Target group: Caregivers of Children Under 18

  • Targeting caregivers of children under the age of 18, with and without neurodevelopmental disorders

  • Living anywhere internationally

  • Focused on what children have in common as strengths

  • View the digital flyer here

Parenting Adolescents with FASD Study

Target group: Adolescents with and without FASD and their caregivers

  • Adolescents with and without FASD (12-18 years old) and their caregivers

  • Living in Canada, the United States, the United Kingdom, Australia, or New Zealand

  • Focused on understanding the daily parenting experiences of adolescents with FASD

  • View the digital flyer here

  • To read more about the study visit here

Mother and Son
Playing with Fidget Spinner

Sensory Strategies Study

Target group: Caregivers of Children with FASD

  • Caregivers of children ages 0-12 with an FAS or FASD diagnosis can participate

  • Study conducted by graduate students from Nazareth University (NY) Occupational Therapy program

  • Investigating sensory strategies used by caregivers of children with FASD and where they learned them 

  • Additional opportunity to participate in a focus group (link for that at the end of the survey below)
  • View the flyer here

  • To complete the survey visit here

CBT-A Study

Target group: Teens with FASD and/or Caregivers

  • Teens with FASD (ages 14-17), caregivers, or both can participate

  • Open to individuals living in the US

  • This study will help us adapt a mental health therapy for teens with FASD

  • This study involves an online survey

  • The survey includes short videos explaining parts of the therapy program

  • Participants are asked if they make sense and what changes might be needed

  • To learn more, click here for the general information flyer or here for details and an interest form

Mother and Sons
Technology Class

Thriving with FASD Study

Target group: Young Adults with FASD

  • Young adults ages 18-25 can participate

  • Residents of the US only

  • Involves two interviews on Zoom (~30 minutes each)

  • Try out a goal setting activity and social support network tool

  • Help us learn what helps adults thrive

  • Results will help inform a new program

  • To learn more: https://bit.ly/thrivingFASD

  • Email: thrivelab@urmc.rochester.edu

Court Appointed Special Advocate (CASA) Study

Target group: Family Court Judges

  • Residents of US only

  • Involves one interview exploring how CASA volunteers can aid in identifying children with FASD and facilitating access to services

  • Interviews with CASA staff and personnel have been completed (only recruiting judges at this time)

  • View the flyer here

  • Find out more information and an interest form here

American Judge
Attentive Therapist

FMF Connect Pro (CIFASD) Study

Target group: Mental Health Providers and Trainees

Recruitment Target Areas:

July - September 2024: NY State Only

August - December 2024: CA State Only

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  • Applicable for ALL mental health providers and trainees serving children ages 3-12 and their families

  • Having identified children with FASD on caseloads is not required

  • FMF Connect Pro teaches providers how to do routine screening of prenatal alcohol exposure with all clients, apply DSM-5 diagnosis for FASD, and support families using the FMF Connect app

  • Continuing education provided for psychology, social work, and counseling

  • View the flyer here

  • To learn more visit: https://providers.fmfconnect.com

  • Email: fmfconnect@urmc.rochester.edu

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