FASD Research Recruitment

Mandated Reporting Laws, Prenatal Alcohol Use, and Fetal Alcohol Spectrum Disorders: A Policy Analysis Study

Primary goal is to evaluate US federal and state mandated reporting laws that require FASD and prenatal alcohol exposure to be reported to Child Protective Services (CPS)
Project intends to provide a final policy recommendation for mandated reporting laws related to prenatal alcohol exposure and FASD
Data collected through survey responses and stakeholder interviews
Access the survey here

Researchers from any country globally who study FASD, including principal investigators (PIs), research staff, graduate students, etc.)
Requires reading and writing in English
Focused on understanding barriers and facilitators to community-engaged research practices in the FASD field (both clinical and preclinical work)
View the digital flyer here
Access the survey here

For participants in the United States and Canada
Focused on understanding the how spatial abilities develop in typically developing children and people with intellectual disabilities.
Participants complete several tasks of learning that are age-appropriate and administered individually.
Requires parents to complete several questionnaires about daily behaviors of their children
Study sessions conducted via Zoom (2-3 hours, over 2 to 4 sessions).
Sessions are recorded and used only for experimental purposes
Participants receive a $50 gift card for their time and effort
View the digital flyer here

Targeting caregivers of children under the age of 18, with and without neurodevelopmental disorders
Living anywhere internationally
Focused on what children have in common as strengths
View the digital flyer here

Adolescents with and without FASD (12-18 years old) and their caregivers
Living in Canada, the United States, the United Kingdom, Australia, or New Zealand
Focused on understanding the daily parenting experiences of adolescents with FASD
View the digital flyer here
To read more about the study visit here

Caregivers of children ages 0-12 with an FAS or FASD diagnosis can participate
Study conducted by graduate students from Nazareth University (NY) Occupational Therapy program
Investigating sensory strategies used by caregivers of children with FASD and where they learned them
Additional opportunity to participate in a focus group (link for that at the end of the survey below)
View the flyer here
To complete the survey visit here

Teens with FASD (ages 14-17), caregivers, or both can participate
Open to individuals living in the US
This study will help us adapt a mental health therapy for teens with FASD
This study involves an online survey
The survey includes short videos explaining parts of the therapy program
Participants are asked if they make sense and what changes might be needed
To learn more, click here for the general information flyer or here for details and an interest form

Residents of US only
Involves one interview exploring how CASA volunteers can aid in identifying children with FASD and facilitating access to services
Interviews with CASA staff and personnel have been completed (only recruiting judges at this time)
View the flyer here
Find out more information and an interest form here

Recruitment Target Areas:

July - September 2024: NY State Only

August - December 2024: CA State Only

Applicable for ALL mental health providers and trainees serving children ages 3-12 and their families
Having identified children with FASD on caseloads is not required
FMF Connect Pro teaches providers how to do routine screening of prenatal alcohol exposure with all clients, apply DSM-5 diagnosis for FASD, and support families using the FMF Connect app
Continuing education provided for psychology, social work, and counseling
View the flyer here
To learn more visit: https://providers.fmfconnect.com
Email: fmfconnect@urmc.rochester.edu